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  "notes": "Includes a photo of a child with medical equipment to humanize the disease impact.",
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      "text": "May present in the first 3 months of life; Cholestasis is the most common feature, typically presenting with unremitting pruritus; Causes quality of life impairments including growth failure, sleep disturbances, disfiguring xanthomas; Children with ALGS may need a liver transplant",
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      "text": "Alagille Syndrome (ALGS) A rare, life-threatening, genetic disorder, with multi-system involvement including paucity of liver bile ducts, leading to bile acid buildup.",
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